Walla Walla family raising awareness for disease that took daughter’s life
WALLA WALLA, Wash. — A Walla Walla family is taking action to raise awareness for a rare form of brain cancer that took their daughter’s life.
Julianna Sayler was only 8 years old when she was diagnosed with Diffuse Intrinsic Pontine Glioma, a rare form of brain cancer that typically affects children between the ages of 4 through 11.
Julianna went through experimental treatments in both London and Mexico, but eventually passed away after a nine month battle. But her family vowed to continue her legacy through the Julianna Sayler Foundation.
The foundation aims to raise awareness for DIPG, look for a cure and provide financial help for families with a children fighting the disease.
“Julianna’s desire was to spread awareness so we can find a cure,” Stacie Sayler said. “Families shouldn’t be told to go home and make memories because there’s nothing we can do.”
Recently, the #LemonFaceChallenge has been making its way across social media where people record the face they make after sucking on a lemon wedge. The challenge is meant to raise awareness for DIPG like the ice bucket challenge did for ALS.
The Sayler family participated in the challenge on Tuesday and is encouraging everyone else to do so, for Julianna and all the other children diagnosed with DIPG.